This is a guest post from Michelle Sawicki.
When I was 27, my life as I knew it was stripped away from me. I went from being a totally healthy, active, vivacious young woman to being completely bedridden all in one day. Doctor after doctor were puzzled by my strange symptoms, which were numerous and debilitating.
It took eight months for me to be diagnosed with Postural orthostatic tachycardia syndrome. It took a year for me to be able to work again, and then it was only a part time, sit-down job. A ridiculously high heart rate and bottoming out blood pressure left me out of breath and seeing-stars-dizzy whenever I stood up for any length of time. I was lucky though; some people with postural orthostatic tachycardia syndrome are wheel chair bound and can’t stand up at all.
It has now been eight years since I was originally diagnosed with postural orthostatic tachycardia syndrome, an often unheard of disorder characterized by dysfunction of the autonomic nervous system, the part of the body that is involved in the control of automatic functions such as breathing, temperature, heart rate and blood pressure. I have healed greatly in the last eight years, and I know that I am blessed to be able to go for walks or just stand up to hug my husband and son when they come in the door. I feel as if I’ve been given a second lease on life, and I’ve spent the last four years running a nonprofit organization dedicated to helping others who have been diagnosed with postural orthostatic tachycardia syndrome.
Because the disorder is not well known, funding is in short supply. If there is anyone out there who can help me, I’d greatly appreciate it. [See donation information below]
Donations are tax deductible and can be made:
Online at www.dinet.org
PO Box 55
Brooklyn, MI 49230